Introduction
You may find yourself struggling to balance long-term relationship insecurities with the sudden terror of a terminal medical diagnosis. Navigating chronic health crises often isolates you, forcing you to manage complex hospital bureaucracies, aggressive treatments, and eventual end-of-life decisions without a clear roadmap.
Michael Ausiello argues in Spoiler Alert that confronting mortality transforms your romantic priorities, demanding fierce advocacy, radical honesty, and resilience through devastating grief.
The book traces this emotional trajectory from initial relationship foundations through medical crises, emergency weddings, caregiving, decline, and final closure. You will learn how to handle overwhelming loss while preserving the dignity of your partner. What does it take to sustain love through terminal illness? How do you advocate effectively within the medical system? Can you find grace and closure after profound grief?
1. Meeting and Relationship Foundations
Opposites can attract and form a deeply connected bond despite initial differences in backgrounds, while long-term relationships require careful navigation of codependency and separate living arrangements.
First Encounters
You meet people in unexpected places. The author and Kit met at the Gay Sports Ball at Webster Hall in New York City two months after 9/11 in 2001. They quickly formed an intense, banter-filled connection despite their starkly different upbringing and interests. Kit possessed an aversion to television while the author maintained an extensive pop-culture obsession.
Managing Distance and Coping
Maintaining separate residences can serve as a deliberate strategy for long-term couples to manage codependency and refresh their relationship. After 13 years together by the author's forty-second birthday, mounting friction over lifestyle habits and dwindling intimacy prompted a change. They decided to sell their apartment and maintain separate residences for a trial period of a year to find breathing room without breaking up.
- Kit signed a lease on a one-bedroom apartment in Williamsburg, Brooklyn, for $1,300 a month.
- The author lived in a brownstone in the West Village.
- This living arrangement successfully lowered relationship tension for 6 months before an Atlantic City trip.
Partners in distressed relationships often develop contrasting coping mechanisms like alcohol and cannabis use to deal with underlying anxiety and resentment. As relationship stress and a lack of intimacy grew, Kit increased his cannabis consumption. The author progressively escalated his wine drinking to numb insecurities, avoid difficult conversations, and cope with unexpressed fears.
The author went from hating wine to relying on multiple bottles of wine during evening television viewing routines to soothe anxieties. This habit contributed to gaining 30 extra pounds over 12 years. The couple also endured 2 years without intercourse before the Atlantic City trip.
Small joyful getaways and lighthearted rituals can temporarily lift the heavy burdens of long-term relationship strain. The author organized a birthday weekend trip to Atlantic City featuring high-end dining, gambling, and visits to budget stores. They booked 2 hotel rooms at the $2,000,000,000 Revel Casino Hotel complex, staying on the 28th floor of their oceanfront suite.
The author won $700 on a quarter slot machine at Revel and playfully laid the cash out on the nightstand for Kit to find.
2. The Medical Crisis Begins
Unusual physical symptoms dismissed as minor ailments can quickly escalate into terrifying medical diagnoses that trigger immediate psychological trauma and caregiver isolation.
Diagnostic Dread
Kit began experiencing bowel discomfort and trace amounts of blood in his semen. He initially attributed these signs to a large hemorrhoid and visited a colorectal specialist for a biopsy.
Kit felt like he had a golf ball lodged in his rectum. This led to a medical appointment at 2 in the afternoon on Wednesday, the exact same day you visited the set of The Americans while arriving on the soundstage at 1 in the afternoon.
When Dr. Samuel Voight emerged from the biopsy procedure and stated that he was concerned about Christopher, it instantly revived unresolved trauma from your mother's terminal cancer death and plunged you into a spiral of dread. While waiting for Kit's biopsy results at Lenox Hill Hospital, you experienced severe anxiety, pacing the waiting room at the seventy-four-minute mark to demand an update while repeatedly silencing Kit's aggressively upbeat iPad alarm during the initial thirty-six-hour timeframe set to stay optimistic.
Navigating the Medical Maze
When informed of the neuroendocrine tumor, Kit initially believed he was given a positive prognosis involving a 70 percent regression or remission rate. Online research and conflicting medical studies instead revealed that neuroendocrine tumors of the anus carry a much graver, highly fatal prognosis with a hovering life expectancy of one year. You engaged in a frantic internet search late at night, discovering that Steve Jobs had suffered from the same rare variety of poorly differentiated tumor.
Faced with conflicting and frightening prognostic data, you took charge by secretly mapping out a multi-doctor consultation schedule across major cancer institutions while keeping the severity hidden from wider family and the public. You reached out to fellow writer Jeff Jensen, whose wife Amy was battling brain cancer, to finally unburden your intense fear and grief.
You can organize consultations effectively when facing a severe health crisis by following specific steps:
- Identify key specialists and leading cancer centers in the field.
- Coordinate with the primary doctor's office to have biopsy results and pathology slides delivered to the respective oncologists.
- Map out a detailed schedule of multiple specialist appointments across consecutive days, resulting in four total oncology appointments scheduled for the following week across different specialists and institutions.
Kit attempted to train their cat, Mister Scooch, to use a human toilet via a commercial product called Litter Kwitter to eliminate the aesthetic displeasure of a traditional litter box. After using a series of litter-filled plastic discs that fit over the rim of the toilet and making the discs smaller week by week until only a regular toilet seat remains over eight weeks or less, the cat revolted after one year by leaving steaming piles of feces on the middle of the couple's bed until his old litter box was finally restored.
3. Proposals and Medical Logistics
Facing a life-threatening cancer diagnosis clarifies what matters most, driving urgent marriage proposals and meticulous coordination of specialist second opinions.
Despite previous disinterest in marriage and fears of divorce, Michael realizes that Kit is his true family when faced with a terminal prognosis. He plans a surprise proposal using a ring hidden inside a pastry box during their regular morning breakfast routine.
Michael proposes to Kit with a ring hidden in a Danish pastry box on a Tuesday morning, right before heading to a CAT scan at Sloan Kettering and city hall wedding preparations.
Specialist Consultations
Recognizing the stress and volume of information during oncology consults, Kit sets up a voice memo application on Michael's iPhone so they can record every specialist visit and review them at the end of the week.
- Open the voice memo app on the phone
- Hit record before the consultation begins
- Place the device on the doctor's desk
- Review the recordings at the end of the week to decide on a specialist
Kit grabs Michael's iPhone outside Dr. Barnes's office, sets up a voice memo app within sixty seconds, and has Michael place it on the doctor's desk during the consultation.
Dr. Barnes reviews Kit's CAT scan and reveals small pulmonary nodule densities in the chest and a hyper-vascular nodule in the liver, noting they are nonspecific and need further investigation. However, he reassures them that neuroendocrine tumors are generally very amenable to therapy compared to agno-carcinomas.
Dr. Barnes explains during the consultation at his East Side office that while there are lung and liver nodules that need verification, neuroendocrine tumors are among the most treatable and potentially curable conditions.
While Dr. Barnes and Dr. Cullen initially offered an upbeat prognosis and ruled out terminal fears, and Dr. Abbott acknowledged an aggressive high-grade neuroendocrine tumor while expressing optimism, Dr. Michelle Davis at Sloan Kettering delivered a stage 4 diagnosis and estimated a life expectancy of about a year.
After a morning of positive consultations with Dr. Barnes and Dr. Cullen in Union Square, Michael and Kit received a starkly different and devastating assessment from Dr. Davis at Sloan Kettering's outpatient pavilion.
Oncologists recommended a powerful combination of cisplatin and etoposide to combat the fast-growing tumor, warning of extreme fatigue, nausea, hair loss, and changes in taste. Because of an enormous fist-sized rectal tumor causing severe discomfort when sitting, standard chemo recliners were completely unusable, requiring specialized bed accommodations.
When touring the chemo suite at Dr. Abbott's office and later at Sloan Kettering, Michael immediately inspected the seating to ensure Kit could lie on his side due to his large rectal tumor.
4. The Wedding Day and Bureaucracy
Urgent life-changing circumstances force couples to navigate strict legal hurdles, secure judicial waivers, and improvise wedding symbols while absorbing terminal prognoses.
New York City marriage bureau rules normally require a 24-hour waiting period before a ceremony. Couples needing to marry immediately due to impending medical treatments must secure a judicial waiver from a judge at the Supreme Court building before the bureau closes.
You can follow these steps to expedite your marriage:
- Obtain a marriage license from the city clerk's office for 35 dollars.
- Go across the street to 60 Centre Street to request a judicial waiver from a judge.
- Present extenuating circumstances such as an impending cancer treatment start date.
- Return to the marriage bureau with the signed waiver before it closes at 3:45 p.m.
On their wedding day, Michael and Kit raced across Centre Street to 60 Centre Street, dodged a Law & Order: SVU film shoot, and played the cancer card to get a judge to sign their judicial waiver in time.
Securing the Waiver
When resized wedding bands were not ready in time for the ceremony, the couple utilized novelty items won at an arcade as temporary placeholders for their vows. During their ceremony at the city clerk's office, Kit and Michael exchanged black plastic spider rings won weeks earlier at an Atlantic City arcade after a relationship lasting 13 years.
Ceremony and Vows
The juxtaposition of celebrating a marriage while absorbing a terminal cancer prognosis creates intense emotional turmoil, leading to overwhelming grief, panic attacks, and tearful vows focused on enduring love and mutual support. After returning to their West Village apartment following the wedding in 53-degree weather, Kit broke down in tears, expressing his terror of dying and extracting a promise from Michael to live on his behalf if he could no longer fight.
Michael and Kit decided to lead with the good news of their marriage certificate before explaining that Kit had a rare, aggressive cancer with varying medical prognoses, successfully shielding his parents from the harshest apocalyptic forecasts. Kit and Michael sat down Bob and Marilyn in Millersburg, presented their marriage certificate, and explained the cancer diagnosis without overwhelming them with Dr. Davis's grim prognosis.
Kit decided to name his XXL rectal tumor The Lurker after a campy B-movie monster figurine, placing it next to a ceramic middle-finger statue on the coffee table as a visual symbol of resistance on the first day of treatment. Kit hunted through his kitchen cabinets to find The Lurker figurine from Comic-Con and paired it with a 99-cent store middle-finger statue on their coffee table.
5. Caregiving and Treatment Realities
Navigating hospital bureaucracy and aggressive chemotherapy requires fierce advocacy for patient comfort, palliative support, and meticulous nutritional tracking.
You can control a major medical crisis by broadcasting a curated Facebook Cancer Diary post that summons a supportive community. Michael posted a 420-word update on Facebook on March 24, 2014, sharing both the cancer diagnosis and their City Hall wedding with Nina Boesch as witness after a 13-year courtship before marriage.
Patient Advocacy
Navigating hospital bureaucracy as a caregiver requires fierce, uncompromising insistence on necessary accommodations for the patient's physical limitations. At Memorial Sloan Kettering, Michael strongly confronted the receptionist and nurse about getting a bed instead of an infusion chair for Kit on the 6th floor of the Sloan pavilion until they were moved to a private room.
When you manage hospital visits for someone facing severe physical pain, you must follow specific steps:
- Confirm whether the patient is getting a bed rather than a chair before checking in.
- Explicitly state physical limitations such as tumor size and pain levels when accommodations are missing.
- Refuse to settle for standard uncomfortable seating when medical necessity dictates otherwise.
Managing Side Effects
Managing terminal illness requires strict dietary interventions and meticulous symptom tracking to maintain patient weight and strength. Michael created a high-calorie secret recipe shake consisting of Ensure, vanilla ice cream, peanut butter, whey protein powder, and castor oil, totaling about six hundred calories.
To support nutritional intake during aggressive treatment, you can apply practical kitchen routines:
- Combine one eight-ounce bottle of vanilla-flavored Ensure, one cup of vanilla ice cream, a tablespoon of Skippy creamy peanut butter, a scoop of whey protein powder, and a drizzle of castor oil in a blender.
- Serve two high-calorie nutrient-rich shakes a day to the patient.
- Supplement the shakes with dinners based on the patient's current food cravings ordered via takeout apps on Seamless.
Kit suffered severe side effects, including extreme fatigue, vomiting, and excruciating rectal pain caused by the tumor or constipation, sometimes spending four hours trying to endure a single painful bowel movement. Despite a chemo coma and a 7-week period where the initial chemo cocktail failed to impact The Lurker, Kit successfully spent ninety minutes installing fine mesh hardware cloth around their West Village apartment's terrace, allowing their cat Mister Scooch to safely sit outside on the 6 by 6 foot quasi-terrace.
When a health crisis threatens a relationship, bringing professional support into the home helps partners confront terminal outcomes together. Tony Frankenberg made a rare house call to Michael and Kit's apartment for a 60-minute session after their 12 years of therapy to help them navigate the devastating news that the chemo had no impact on the tumor and that new nodules had formed.
6. Decline and End of Life Decisions
Persistent new symptoms like migraines during advanced cancer can indicate metastasis to the brain, drastically shortening the expected timeframe. After weeks of dismissing Kit's migraines as a chemo side effect, Dr. Davis ordered an emergency MRI upon learning of them. It revealed multiple tiny nodules on the brain near the brain stem, confirming a terminal timeline of less than six months expected remaining lifespan.
Receiving a definitive terminal diagnosis can sometimes bring a strange sense of psychological relief by removing the exhausting uncertainty of fighting the unknown.
While watching a TV pilot on the couch, Michael received the call from Dr. Davis confirming that the cancer had spread to Kit's brain. Instead of falling apart, Kit expressed relief upon learning the cancer had spread to his brain because he finally knew where he stood and where the disease was heading. He calmly organized an evening on the deck with wine and cannabis rather than hosting a pity party.
Overcoming long-standing personal aversions to a partner's coping mechanisms can create shared bonding moments during final goodbyes. Michael finally decided to try cannabis with Kit on the deck to avoid the regret of never experiencing it with the marijuana master himself. Kit patiently guided him through the steps:
- Take the one-hitter out of one compartment
- Lightly grind it into the other compartment two or three times
- Put the empty end in your mouth and light the other end with the lighter
- Inhale slowly and let it sit in your lungs for a few seconds before exhaling
This led to a shared experience of heightened sensory awareness and uncontrollable giggles. Final months also provide an opportunity to clear away long-held grievances and practice radical honesty. Sitting on the deck under the stars, Kit tearfully confessed to past infidelity with Todd, and Michael offered complete forgiveness, removing a heavy emotional burden from both of them. Kit asked Michael to promise not to let him die in a hospital and to look after his parents.
Hospice and Closure
Caregivers of terminal patients face agonizing choices between managing acute crises in an inpatient hospital unit or honoring a promise not to let their loved one die in a hospital. When Kit developed severe delirium, high fever, restlessness, and incontinence at their 200-year-old three-story brownstone walk-up, Michael had to weigh a hospital transfer. Kit experienced severe agitation and jumbled mental states, forcing Michael and Bob and Marilyn to physically hold him down to keep him from crawling out of bed.
To ensure Kit could see his own memorial retrospective while still alive, Michael covertly gathered 13 years of video and photos stored on the laptop. He enlisted friends to pull together digital assets and put together an 11 minutes video length edited by Jason Averett.
7. Grief, Rituals, and Life After Loss
Asking for forgiveness for not loving a partner enough at the end of life can preemptively ward off postmortem guilt and prompt reassurance.
Following advice from Jeff Jensen, whose late wife succumbed to brain cancer, Michael apologized to Kit for not loving him better, prompting an authentic albeit cheeky exchange. Jeff Jensen advised Michael to apologize for not loving his partner better so that the partner could reply that he could not have been loved more.
- Apologize to the dying partner for not loving them better.
- Allow the partner to respond and provide reassurance.
When Kit experienced nighttime restlessness and moaning in the hospital, Michael discovered that executing a precise sequence of physical and oral comforts repeatedly subdued him back to sleep. Michael systematically rubbed Kit's feet, massaged his hands and scalp, and offered sips of Orangina, Ensure, Jell-O, and ice chips to soothe his nighttime agitation.
- Gently rub the patient's feet to calm them down.
- Relocate to the head of the bed and massage hands and scalp.
- Offer sips of Orangina through a straw.
- Follow up with sips of Ensure and bites of Jell-O.
- Finish with ice chips to help them drift back to sleep.
As Kit lost his appetite and strength, Michael meticulously monitored every ounce of nourishment, such as fractions of Kind bars and ice pops, aiming for five hundred calories a day. Michael kept close track of Kit's daily intake, noting when he barely broke the one-hundred-calorie benchmark on the Friday before he passed away. Falling significantly short of this threshold and seeing intake drop to practically nothing signaled that the end was near.
Ashes and Aftermath
Fulfilling a deceased partner's specific final request regarding their remains provides a tangible pathway to transcendent closure.
Five months elapsed since Kit's death when Michael traveled to Harrisburg. On the chartered Millersburg Ferry, Michael scattered Kit's ashes into the Susquehanna River while family members tossed flowers, concluding the ritual by dropping both his own and Kit's wedding rings into the water. This fulfilled a promise made twelve years prior on the same ferry, using a Tupperware container to transport the ashes with Kit's parents and aunts.
Years later, Michael operates a hybrid greeting card, novelty, and midcentury furniture boutique named See You Next Tuesday in Hudson, New York, alongside a dedicated 750-square-foot museum room housing his lifelong Smurf collection. In the flash-forward on Christmas Eve, Michael runs his shop, interacts with customers buying Pretty Bitter greeting cards, and shares his life with a black Labrador retriever named Mister Jibbs.
10 Key Ideas
- Maintaining separate residences served as a deliberate strategy for long-term couples to manage codependency and refresh their relationship after thirteen years together.
- Faced with a terminal neuroendocrine tumor diagnosis and conflicting prognoses, Michael took charge by mapping out a multi-doctor consultation schedule across major cancer institutions.
- Urgent life-changing circumstances forced the couple to navigate strict legal hurdles, secure a judicial waiver from a judge at the Supreme Court building, and exchange black plastic spider rings as wedding bands.
- Navigating hospital bureaucracy as a caregiver required fierce, uncompromising insistence on necessary accommodations, such as demanding a bed instead of a standard infusion chair for Kit.
- Michael managed terminal illness and maintained Kit's weight by creating high-calorie secret recipe shakes consisting of Ensure, vanilla ice cream, peanut butter, whey protein powder, and castor oil.
- Dr. Davis ordered an emergency MRI for Kit's migraines that revealed tiny brain stem nodules, confirming a terminal timeline of less than six months expected remaining lifespan.
- Kit expressed relief upon learning the cancer had spread to his brain because he finally knew where he stood, calmly organizing an evening on the deck with wine and cannabis.
- Following advice from Jeff Jensen, Michael apologized to Kit for not loving him better so that Kit could provide reassurance before his final days.
- Michael systematically rubbed Kit's feet, massaged his hands and scalp, and offered sips of Orangina, Ensure, Jell-O, and ice chips to soothe his nighttime agitation.
- Michael fulfilled a promise made twelve years prior by scattering Kit's ashes into the Susquehanna River from the Millersburg Ferry and dropping their wedding rings into the water.